Is Cystic Fibrosis Foundation a Trustworthy Charity?
Independent charity trust assessment · Updated May 03, 2026
25
Not Recommended for Donors
Significant transparency concerns — conduct thorough research before donating
F
Cystic Fibrosis Foundation — Nerq Trust Score 24.8/100 (F). Donor recommendation: Not Recommended. Financial Transparency 42/100, Program Effectiveness 15/100, Governance 32/100. Estimated program expense ratio: 40%. Updated 2026-05-03.
Cystic Fibrosis Foundation has a Nerq Trust Score of 24.8/100 (F). Donor recommendation: Not Recommended. Estimated program expense ratio: 40%. Financial Transparency: 42/100. Program Effectiveness: 15/100. Last verified: 2026-05-03.
Cystic Fibrosis Foundation is a nonprofit organization with a Nerq Trust Score of 24.8/100 (F). Donor recommendation: Not Recommended. CF research and care. Venture philanthropy model produced breakthrough drugs.
Overall assessment: Cystic Fibrosis Foundation is not recommended for donors without further due diligence.
Trust Score Breakdown
Financial Transparency (30%)42/100 Program Effectiveness (25%)15/100 Accountability (10%)37/100
Key Findings
⚠Financial Transparency: 42/100 — Fair
✗Program Effectiveness: 15/100 — Very Poor
✗Governance: 32/100 — Poor
✗Donor Trust: 15/100 — Very Poor
✗Accountability: 37/100 — Poor
How does Cystic Fibrosis Foundation spend its money?
Financial Transparency score: 42/100 (Fair).
Estimated program expense ratio: 40%.
A significant portion of funds may go to administration and fundraising.
Financial estimates derived from Nerq analysis. Verify with the charity's public filings (IRS Form 990) for exact figures.
How is Cystic Fibrosis Foundation governed?
Governance score: 32/100 (Poor).
Accountability score: 37/100 (Poor).
Governance practices raise concerns — donors should verify board independence and audit history.
Accountability measures appear limited — request detailed impact reports before donating.
Frequently Asked Questions
Is Cystic Fibrosis Foundation a trustworthy charity?
Cystic Fibrosis Foundation has a Nerq Trust Score of 24.8/100 (F). Not Recommended. Conduct thorough research before donating.
How does Cystic Fibrosis Foundation spend donations?
Estimated program expense ratio: 40%. Financial Transparency score: 42/100. Review the latest Form 990 for detailed spending breakdown.
Is my donation to Cystic Fibrosis Foundation tax-deductible?
Check Cystic Fibrosis Foundation's IRS tax-exempt status on the IRS Tax Exempt Organization Search tool. Most registered 501(c)(3) nonprofits offer tax-deductible donations. Verify directly with the organization.
Does Cystic Fibrosis Foundation publish annual reports?
Transparency score: 42/100. Check the organization website or GuideStar/Candid for available reports.
How effective is Cystic Fibrosis Foundation at achieving its mission?
Program Effectiveness score: 15/100 (Very Poor). Limited evidence of program effectiveness — request impact data directly.
Who oversees Cystic Fibrosis Foundation?
Governance score: 32/100. Governance information is limited — review IRS Form 990 for board details.
How does Cystic Fibrosis Foundation compare to similar charities?
Cystic Fibrosis Foundation has an overall trust score of 24.8/100. Compare with similar nonprofits below or browse the full charity index to find top-rated organizations in the same cause area.
How we calculated this score
Cystic Fibrosis Foundation's trust score of 24.8/100 (F) is based on analysis of public financial filings, governance disclosures, program outcomes, and donor feedback signals. The score reflects 5 charity-specific dimensions: Financial Transparency (42/100, 30%), Program Effectiveness (15/100, 25%), Governance (32/100, 20%), Donor Trust (15/100, 15%), and Accountability (37/100, 10%).
Nerq indexes over 7.5 million entities across 26 registries, enabling direct cross-organization comparison. Scores are updated as new data becomes available.
Full methodology documentation · Machine-readable data (JSON API)
Last updated: May 03, 2026 · Data sources: IRS Form 990, GuideStar, Charity Navigator, public filings